UK woman in danger of internal decapitation
A British woman is fighting for her life after a bizarre accident brings her down with a rare disease that could decapitate her from the inside.
A British ceiling fan victim is left with a rare condition that could decapitate her from the inside and she’s trying to raise enough money to travel to a Long Island surgeon for a complicated operation. New York Post reports.
Rachel Pighills, 35, from Worcestershire suffered a debilitating injury when a fan hit her on the head as she stood on her bed as she moved into a new home in 2018, SWNS reported.
A freak accident left a woman with atlantoaxial instability and basilar intussusception, a life-threatening condition in which her skull and brain have slipped into her spine, causing the bone to bulge into her brainstem, her husband, Guy, 41, wrote on the website. GoFundMe page.
As a result, Pugmills can no longer turn his head to a certain angle due to the risk of partial displacement of the spine, which can lead to paralysis or death by internal decapitation !
After further research, many complex tests show a rapid deterioration in her brainstem function, which can completely shut down at any time, leading to brainstem death, Guy wrote.
According to him, in January 2020, she underwent occipital fusion surgery to reduce brain stem compression and improve her quality of life.
The surgeon used rods and screws to attach her skull to her spine and then removed a piece of bone from her skull and spine to make room for her brain, he said.
But the doctor, who was new to the procedure, reportedly failed.
Due to compression of the brainstem, all signals are incorrect. The brain stem subconsciously controls everything, Guy told SWNS.
Her heart rate can go from 60 to 140 beats at the snap of a finger. Signals are confused, he said. There is no quality of life now, it just suffocates. Ideally, she needs non-invasive breathing therapy, but that’s difficult.
The devoted husband added, It made me feel heartbroken and helpless.
Rachel’s only hope seems to be a pioneering operation by Dr. Paolo Bolognese, the only surgeon in the world willing to perform the super complex procedure.
According to his biography, in 2014 the Italian native joined Neurological Surgery, PC, as director of the Chiari Neurosurgical Center. He works at North Shore University Hospital in Manhasset.
Nothing else will work. My only option is to have decompression surgery, and the sooner I do that, the better my chances of full symptom relief and a full recovery, Rachel said.
It would mean I would leave my teenage daughter here to study, but she understands how serious it is and how life changing it can be, added Rachel, who described living in constant fear of paralysis and death.
I feel like there is nothing I can do. I go to work for several hours a day, come home and lie horizontally on the couch. I don’t do anything else, said Rachel, who wears a neck brace and is wheelchair bound.
The family has raised around $64,000 AU$89,800 so far but needs $650,000 AU$912,000 for the operation.
Unfortunately, time is of the essence right now as Rachel is in respiratory failure and every day I see her getting worse, her husband wrote.
The sooner we can raise funds, the more hope we will have for her full recovery. Rachel is now unable to leave the house unaided and has no quality of life.
He added: Watching my wife suffer and die in front of me is heartbreaking. Our daughter constantly worries that one day, returning home from school, she will find out that she has lost her mother forever.
All Rachel wants is to stop living in fear of dying and leave her family behind. Rachel’s hopes and dreams are the same as all moms, she wants to see our daughter grow up and one day be the proud mom at her wedding, he wrote about the 14-year-old girl.